Krystal Biotech Joins debra as Diamond Sponsor for the 2024 debra Care Conference
debra of America is thrilled to announce Krystal Biotech as a Diamond Sponsor of this year’s debra Care Conference (DCC) in Atlanta, GA on July 28-31.
Krystal Biotech is a gene therapy biotechnology company that developed Vyjuvek™, the first U.S. FDA-approved treatment for Dystrophic Epidermolysis Bullosa (DEB). Through their patient support program, Krystal Connect, they provide personalized support and education to help EB Community members begin treatment with Vyjuvek™.
As a Diamond Sponsor of the DCC, Krystal demonstrates their commitment to supporting individuals and families affected by EB. There will be many opportunities for our families to connect with their dedicated team at the conference:
- Visit them at their exhibit booth throughout the meeting starting on Sunday, July 28th which will have a photo booth and a coloring activity!
- Join them on Monday, July 29th at 2:30PM for their program featuring Dr. Marinkovich (Stanford) and Emily & Myrna who will be sharing their experiences;
- Join them Monday evening at dinner starting at 5:45PM;
- You can always reach them at 1-844-5-KRYSTAL!
“Whether it be encouraging a team of patient advocates, championing for a family to have a better quality of life, or raising awareness in the community, the entire Krystal Biotech team is honored to help make a positive impact on the lives of those living with Epidermolysis Bullosa.
The DCC allows Krystal to connect with the patients and families that we are dedicated to helping. I am excited to come together with such a tight-knit community to celebrate all of you and hear directly from you about how we can continue to support the EB community. I can’t wait to see everyone at the end of July!” shares Matt Giordano, Senior Director of Patient Access & Advocacy at Krystal Biotech.
As we look forward to the DCC, we are immensely grateful to Krystal Biotech for their support and dedication to the EB Community. Together, with our dedicated partners, debra continues to pave the way towards a brighter future for all those affected by EB. See you in less than one month, EB Community!
