![Epidermolysis Bullosa Support Staff](/sites/default/files/styles/para_text_with_image/public/2023-07/DEBRA_EpidermolysisBullosa_Staff1.png?itok=JCVuoDiC)
Brett Kopelan
Executive Director
![Epidermolysis Bullosa Support Staff](/sites/default/files/styles/para_text_with_image/public/2023-07/DEBRA_EpidermolysisBullosa_Staff2.jpg?itok=YB7puXSt)
Catherine Doernbrack MSN, RN, CPNP
EB Nurse Educator
![Epidermolysis Bullosa Support Staff](/sites/default/files/styles/para_text_with_image/public/2023-07/DEBRA_EpidermolysisBullosa_Staff3.jpg?itok=q8R_fHl9)
Heather Fullmer
Community Engagement Director
![Epidermolysis Bullosa Support Staff](/sites/default/files/styles/para_text_with_image/public/2023-08/DEBRA_EpidermolysisBullosa_Staff4.jpg?itok=K3RDnrrZ)
Jeanette Gissen
Programs Director
![Epidermolysis Bullosa Support Staff](/sites/default/files/styles/para_text_with_image/public/2023-07/DEBRA_EpidermolysisBullosa_Staff5.png?itok=IbWufrLF)
Jason Kelly
Supporter Led Events Director
![Epidermolysis Bullosa Support Staff](/sites/default/files/styles/para_text_with_image/public/2023-07/DEBRA_EpidermolysisBullosa_Staff6.jpg?itok=ERPyvCJB)
Jenna Kubeck
Special Events Director
![Epidermolysis Bullosa Support Stuff](/sites/default/files/styles/para_text_with_image/public/2024-02/Staff-DarianMcCoy.jpg?itok=aka0GBbH)
Darian McCoy
Programs Manager
![Epidermolysis Bullosa Support Staff](/sites/default/files/styles/para_text_with_image/public/2023-07/DEBRA_EpidermolysisBullosa_Staff7.png?itok=MnMVthn7)
Mike Powers
Finance Director
![Epidermolysis Bullosa Support Staff](/sites/default/files/styles/para_text_with_image/public/2023-07/DEBRA_EpidermolysisBullosa_Staff8.png?itok=H9myKzSl)
Aigerim Saparova-Smith
Digital Marketing Director
![Epidermolysis Bullosa Support Stuff](/sites/default/files/styles/para_text_with_image/public/2023-07/DEBRA_EpidermolysisBullosa_Staff10.png?itok=rVLPLbTt)
Lambert Tamin
Bookkeeper
Board of Directors
Andrew Tavani, Chair, Atlanta, GA
J Alec Alexander, Treasurer, Gainesville, GA
John Lee, Secretary, San Francisco, CA
Richard Gallagher, Chair Emeritus, Gurnee, IL
Amit Bhattacharyya, Seattle, WA
Angela Christiano, Ph.D., New York, NY
Tiffany Clinton, Los Angeles, CA
William Cornman, Sewickley, PA
Ryan Fullmer, Klamath Falls, OR
John Maslowski, Philadelphia, PA
Leslie Rader, Louisville, KY
Rob Rayl, Atlanta, GA
Robert Ryan, Ph.D., Isle of Palms, SC
Chris Sloey, Thousand Oaks, CA
Thomas Trimarchi, Ph.D, New York, NY
James Wetrich, Dallas, TX
Arlene Pessar, R.N, debra of America Founder
Scientific Advisory Board
- Alan Arbuckle, M.D., Kaiser Permanente
- Eugene A. Bauer, M.D., Stanford University School of Medicine
- Susan Bayliss, M.D., Washington University School of Medicine
- Gary Bellus, M.D., University of Colorado at Denver and Health Sciences Center
- Anna L Bruckner, M.D., University of Colorado at Denver and Health Sciences Center
- Angela Christiano, Ph.D. (Co-chair), Columbia University
- Richard A.F. Clark, M.D., SUNY Stonybrook
- Jonathan Alden Dyer, M.D., University of Missouri Health Care
- Ervin Epstein, Jr., M.D., Children's Hospital Oakland Research Institute
- Nancy B. Esterly, M.D., Medical College of Wisconsin
- Jo-David Fine, M.D., Vanderbilt University
- Elaine V. Fuchs, Ph.D., Rockefeller University
- Sharon Glick, M.D., SUNY Downstate Medical Center
- Paul Honig, M.D., Children's Hospital of Philadelphia (CHOP)
- Gerald S. Lazarus, M.D., Johns Hopkins University
- Moise L. Levy, M.D., Baylor College of Medicine and Texas Children's Hospital
- Anne W. Lucky, M.D., Cincinnati Children’s Hospital Medical Center
- Joseph McGuire, M.D., Stanford University School of Medicine
- Laurence Miller,M.D., Potomac, MD
- Kimberly D. Morel, M.D., New York-Presbyterian Hospital
- Amy Paller, M.D., Children's Memorial Hospital, Chicago
- Francis Palisson, M.D., La Universidad del Desarrollo, Chile
- Neil S. Prose, M.D., Duke University Medical Center
- Elena Pope, M.D., Hospital for Sick Children, Toronto
- Juliette Prendiville, M.D., University of British Columbia
- Dennis R. Roop, Ph.D., Baylor College of Medicine
- Lawrence Schachner, M.D., University of Miami School of Medicine
- Tor Shwayder, M.D., Henry Ford Hospital
- Daniel Siegel, M.D., Dermatologic Surgery Institute & President, American Academy of Dermatology
- Mary K. Spraker, M.D., Emory University Clinic of Woodruff Medical Center
- Madeline Weiner, RN, Chapel Hill, NC
- Timothy Wright, D.D.S., University of North Carolina at Chapel Hill