Get to know the incredible people who make up our Epidermolysis Bullosa (EB) Community.
Through their personal stories, they share their experiences and offer insight into what it’s like to live with EB or have a loved one affected by it.
Feeling inspired to tell your story? Your voice matters! Share your story
![Epidermolysis Bullosa Personal Story](/sites/default/files/styles/para_text_with_image/public/2024-05/HayleyWinder-Thumbnail.jpg?itok=NRpMUd5i)
Hayley Winder
![Epidermolysis Bullosa Personal Story](/sites/default/files/styles/para_text_with_image/public/2024-02/NicoleRamseySquare.jpg?itok=cOsmhg7f)
Nicole Ramsey
![Epidermolysis Bullosa Personal Story](/sites/default/files/styles/para_text_with_image/public/2023-07/DEBRA_EpidermolysisBullosa_PersonalStory1.jpg?itok=ZqJQthb1)
Jose Vivanco
![Epidermolysis Bullosa Personal Story](/sites/default/files/styles/para_text_with_image/public/2023-07/DEBRA_EpidermolysisBullosa_PersonalStory2.jpg?itok=R0nJhOMH)
Abdullah Arekat
In Loving Memory
![Epidermolysis Bullosa Personal Story](/sites/default/files/styles/para_text_with_image/public/2023-07/DEBRA_EpidermolysisBullosa_PersonalStory3.jpg?itok=Zzw46Fc9)
Winnie Bruce
![Epidermolysis Bullosa Personal Story](/sites/default/files/styles/para_text_with_image/public/2023-07/DEBRA_EpidermolysisBullosa_PersonalStory4.jpg?itok=VnTA4HjL)
Savanah Zech
![Epidermolysis Bullosa Personal Story](/sites/default/files/styles/para_text_with_image/public/2023-07/DEBRA_EpidermolysisBullosa_PersonalStory5.jpg?itok=85tpq45o)
James Dylan
![Epidermolysis Bullosa Personal Story](/sites/default/files/styles/para_text_with_image/public/2023-07/DEBRA_EpidermolysisBullosa_PersonalStory6.jpg?itok=9fsuZKAB)
Jane Scherlag
![Epidermolysis Bullosa Personal Story](/sites/default/files/styles/para_text_with_image/public/2023-07/DEBRA_EpidermolysisBullosa_PersonalStory7.jpg?itok=OrenCPv3)
Annie Keys Kendrick
![Epidermolysis Bullosa Personal Story](/sites/default/files/styles/para_text_with_image/public/2023-07/DEBRA_EpidermolysisBullosa_PersonalStory8.jpg?itok=SBXt_9PJ)
Walker Family
In Loving Memory of Chance Walker
![Epidermolysis Bullosa Personal Story](/sites/default/files/styles/para_text_with_image/public/2023-07/DEBRA_EpidermolysisBullosa_PersonalStory10.jpg?itok=Md2tBTD0)
Faith Smith
![Epidermolysis Bullosa Personal Story](/sites/default/files/styles/para_text_with_image/public/2023-07/DEBRA_EpidermolysisBullosa_PersonalStory11.jpg?itok=rwaT-zj_)
Melissa Barriga
![Epidermolysis Bullosa Personal Story](/sites/default/files/styles/para_text_with_image/public/2023-07/DEBRA_EpidermolysisBullosa_PersonalStory12.jpg?itok=hi7egyWf)
Veronica Stewart
![Epidermolysis Bullosa Personal Story](/sites/default/files/styles/para_text_with_image/public/2023-07/DEBRA_EpidermolysisBullosa_PersonalStory13.jpg?itok=LSslGBHN)
Zora Rowe Redd
![Epidermolysis Bullosa Personal Story](/sites/default/files/styles/para_text_with_image/public/2023-07/DEBRA_EpidermolysisBullosa_PersonalStory14.jpg?itok=e5kPTGRr)
Jan Marhefka
![Epidermolysis Bullosa Personal Story](/sites/default/files/styles/para_text_with_image/public/2023-07/DEBRA_EpidermolysisBullosa_PersonalStory15.jpg?itok=D7yJGZm5)
Aaran Schrader
![Epidermolysis Bullosa Personal Story](/sites/default/files/styles/para_text_with_image/public/2023-07/DEBRA_EpidermolysisBullosa_PersonalStory16.jpg?itok=un3xmple)
Ella Suchocki
![Epidermolysis Bullosa Personal Story](/sites/default/files/styles/para_text_with_image/public/2023-07/DEBRA_EpidermolysisBullosa_PersonalStory17.png?itok=5DZJowVT)
Carter Dvorak
![Epidermolysis Bullosa Personal Story](/sites/default/files/styles/para_text_with_image/public/2023-07/DEBRA_EpidermolysisBullosa_PersonalStory17.jpg?itok=MtpDhQlX)
Abby Jones
![Epidermolysis Bullosa Personal Story](/sites/default/files/styles/para_text_with_image/public/2023-07/DEBRA_EpidermolysisBullosa_PersonalStory18.jpg?itok=48xtkH4N)
Jennifer Kim
![Epidermolysis Bullosa Personal Story](/sites/default/files/styles/para_text_with_image/public/2023-07/DEBRA_EpidermolysisBullosa_PersonalStory19.jpg?itok=GOivUbwz)
Jeremiah Marshall
![Epidermolysis Bullosa Personal Story](/sites/default/files/styles/para_text_with_image/public/2023-07/DEBRA_EpidermolysisBullosa_PersonalStory20.jpg?itok=iZDpOJpo)
Nicole Esser
![Epidermolysis Bullosa Personal Story](/sites/default/files/styles/para_text_with_image/public/2023-07/DEBRA_EpidermolysisBullosa_PersonalStory21.jpg?itok=uhK2OhlO)
Sarah Morrill
![Epidermolysis Bullosa Personal Story](/sites/default/files/styles/para_text_with_image/public/2023-07/DEBRA_EpidermolysisBullosa_PersonalStory22.jpg?itok=mYfx6q-u)
Bowen Kim
![Epidermolysis Bullosa Personal Story](/sites/default/files/styles/para_text_with_image/public/2023-07/DEBRA_EpidermolysisBullosa_PersonalStory23.jpg?itok=WgM6W2X9)
Mark Feather
![Epidermolysis Bullosa Personal Story](/sites/default/files/styles/para_text_with_image/public/2023-07/DEBRA_EpidermolysisBullosa_PersonalStory24.jpg?itok=6maxll1t)
Solomon Bonner
![Epidermolysis Bullosa Personal Story](/sites/default/files/styles/para_text_with_image/public/2023-07/DEBRA_EpidermolysisBullosa_PersonalStory25.jpg?itok=23H-Lwg3)
Destiny Fuentes
In Loving Memory
![Epidermolysis Bullosa Personal Story](/sites/default/files/styles/para_text_with_image/public/2023-07/DEBRA_EpidermolysisBullosa_PersonalStory26.jpg?itok=RqyXoWci)
Lindsay Martin
![Epidermolysis Bullosa Personal Story](/sites/default/files/styles/para_text_with_image/public/2023-07/DEBRA_EpidermolysisBullosa_PersonalStory27.jpg?itok=2fUdBMfu)
Anjali Rajan
![Epidermolysis Bullosa Personal Story](/sites/default/files/styles/para_text_with_image/public/2023-07/DEBRA_EpidermolysisBullosa_PersonalStory28.jpg?itok=a9UjTUpd)
Andrew Conrad
![Epidermolysis Bullosa Personal Story](/sites/default/files/styles/para_text_with_image/public/2023-07/DEBRA_EpidermolysisBullosa_PersonalStory29.jpg?itok=mQa7HTRH)
Hodges R. Caldwell, Jr.
![Epidermolysis Bullosa Personal Story](/sites/default/files/styles/para_text_with_image/public/2023-07/DEBRA_EpidermolysisBullosa_PersonalStory30.jpg?itok=Bqpf0vM-)
Williams Family
![Epidermolysis Bullosa Personal Story](/sites/default/files/styles/para_text_with_image/public/2023-07/DEBRA_EpidermolysisBullosa_PersonalStory31.jpg?itok=IaJnSSLd)
Warren Lee Abeyta
In Loving Memory
![Epidermolysis Bullosa Personal Story](/sites/default/files/styles/para_text_with_image/public/2023-07/DEBRA_EpidermolysisBullosa_PersonalStory32.jpg?itok=7CK7TsvM)
Jack Hartmann
![Epidermolysis Bullosa Personal Story](/sites/default/files/styles/para_text_with_image/public/2023-07/DEBRA_EpidermolysisBullosa_PersonalStory33.jpg?itok=fhSYbIXr)
Melissa Curtis
![Epidermolysis Bullosa Personal Story](/sites/default/files/styles/para_text_with_image/public/2023-07/DEBRA_EpidermolysisBullosa_PersonalStory34.jpg?itok=ksEa6Ly8)
Monique McKissick
In Loving Memory
![Epidermolysis Bullosa Personal Story](/sites/default/files/styles/para_text_with_image/public/2023-07/DEBRA_EpidermolysisBullosa_PersonalStory35.jpg?itok=GZSgntop)
Sarah Oliveira
![Epidermolysis Bullosa Personal Story](/sites/default/files/styles/para_text_with_image/public/2023-07/DEBRA_EpidermolysisBullosa_PersonalStory36.jpg?itok=N138JCun)
Bruce Gunn
In Loving Memory
![Epidermolysis Bullosa Personal Story](/sites/default/files/styles/para_text_with_image/public/2023-07/DEBRA_EpidermolysisBullosa_PersonalStory37.jpg?itok=4Yh_cMTc)
Kristin Nugent
EB to Me
In 2014, we ran an “EB to ME” campaign that asked the Community to tell us, in their words, what EB means to them.