You are not alone. 

debra of America has been helping families like yours since 1980.  
 

Emergency Care

Vital information for handling sudden illness or injury in individuals with Epidermolysis Bullosa (EB). 

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Wound Care Distribution Program

Request wound care supplies, free of charge, during times of need. 

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EB Nurse Educator Program

Our EB Nurse Educator is available by phone or email to provide sound advice for those with or caring for someone with EB.

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New Family Advocate Program

An EB diagnosis can be overwhelming, but we are here to help you navigate the treatment and care of your newborn. 

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Legal Aid Program

Know your rights and combat legal issues surrounding EB.

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Smile Fund Program

We fulfill mini-wishes with the goal of bringing joy to those living with this taxing disease.

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Mentorship Program

Our Mentorship Program offers two separate mentorship opportunities for both those living with EB and parents/caregivers.

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debra Care Conference

This multi-day biennial conference is designed specifically for EB families and the professional community to access the best information, discover new ideas, and connect with other EB families from all over the country.

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EB Doctor Directory

Finding a doctor who knows EB is an all-too-common challenge. We've put together an EB Doctor Directory to connect you with knowledgeable medical professionals who have experience in EB.

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EB Connect

EB Connect is a private, online platform for the global EB Community! Connect with, learn from, and collaborate with others who live with and work in EB. Membership is FREE.

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Other Resources

Check out our other helpful resources to assist you in travel, schooling, and more. 

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