Help us make the 2026 debra Care Conference a reality.

Give the gift of connection, empowerment, and education to hundreds of families impacted by Epidermolysis Bullosa (EB). 

Help us make the 2026 debra Care Conference a reality.

Give the gift of connection, empowerment, and education to hundreds of families impacted by Epidermolysis Bullosa (EB). 

Why Your Support Matters

The debra Care Conference (DCC) brings together families impacted by EB, medical professionals, researchers, and treatment developers for an experience unlike any other. This special event is a rare opportunity for our families to connect with one another, learn from top-tier medical professionals in the EB space, and meet face-to-face with the people working to develop treatments

This is an event that changes lives, and we need your help to make the 2026 conference the most impactful yet.

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An Event Like No Other: Hear from Those Who’ve Been There

"One of the things about EB, like many other conditions of its kind, is that it isolates us because of the pain, the bandages, and the travel limitations. That isolation itself—the loneliness that comes with it—is an injury. Having the community together and seeing that I’m not alone is the first emotional, fundamental safety net for the people at the [DCC]."

Dr. Jakub Tolar, University of Minnesota

"Being able to come [to the DCC], I feel seen. I’m with people who know what it’s like, and I don’t feel judged. I don’t feel that I should be hiding anything, and I don’t feel that there’s anything holding me back from what I want to do. It’s a week of freedom for us."

Kate W., living with EB

"We're about to start a fight with the schools because [my daughter with EB] is going to school for the first time. So, the DCC is giving us the fire and ammunition to be able to hit that head-on because we have to really advocate for her with the school system. It’s been a really positive, uplifting experience to give us the energy to go forward."

Mike, Dad to Maeve

Give with Confidence

Charity Navigator 4 Start Charity

 

debra of America has been awarded the highest possible rating of 4 stars from Charity Navigator, the nation's leading charity evaluator. A 4-star rating means that we adhere to sector best practices, execute our mission in a financially efficient way, and are committed to accountability and transparency.

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Frequently Asked Questions

Is this donation tax-deductible?

Yes, debra of America is a 501(c)(3) tax-exempt organization and your donation is tax-deductible within the guidelines of U.S. law. To claim a donation as a deduction on your taxes, please keep your email donation receipt as your official record. 

Does my company match my gift?

Matching gifts may double, or event triple, your contribution's impact! Click below to check if your employer has a Matching Gift Program.

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What if I don't want to give online?

If you'd rather donate by check, please make your check payable to debra of America.

Mailing Address for Check Donations: 

1560 Central Ave, Suite 433
St. Petersburg, FL 33705